Burden: Elderly Patients Struggle to Navigate Complex Health Care System and Services

Sudbury, Massachusetts – A routine trip to collect the mail turned into a painful experience for Susanne Gilliam, 67, when she slipped on black ice in January. The resulting injury to her left knee and ankle set off a chain of events that highlighted the challenges faced by many individuals navigating the complexities of America’s healthcare system.

Seeking treatment for her ankle, Gilliam encountered hurdles and delays as she tried to coordinate care at a hospital near her home. From scheduling X-rays and an MRI to arranging physical therapy sessions for both her knee and ankle, Gilliam found herself overwhelmed by the sheer amount of effort required to receive the necessary medical attention.

Dr. Thomas H. Lee, chief medical officer at Press Ganey, noted that while advancements in medicine have expanded treatment options for various conditions, the healthcare system’s increasing complexity can pose significant difficulties for older adults. This complexity is further exacerbated by the specialization of clinicians, multiple medical conditions, and overlapping guidelines for different ailments.

Research conducted by Prof. Ishani Ganguli from Harvard Medical School revealed that Medicare patients spent a substantial amount of time each year on medical appointments, tests, treatments, and other healthcare-related activities. For some seniors, this burden can consume a significant portion of their lives, impacting their overall well-being and quality of life.

Prof. Victor Montori from the Mayo Clinic has long raised concerns about the overwhelming “treatment burden” that patients face, encompassing not only medical care but also the logistical challenges of navigating the healthcare system, managing medications, and dealing with insurance companies. This burden can become particularly pronounced for older adults with multiple health issues and limited resources.

The experiences of individuals like Jean Hartnett, who juggled caring for elderly parents with complex medical needs, highlight the immense challenges faced by family caregivers in coordinating care and managing multiple healthcare appointments. The emotional and physical toll of such responsibilities can be significant, underscoring the need for better support systems and resources for caregivers.

To alleviate the burdens of healthcare for older adults and caregivers, experts suggest open communication with healthcare providers about treatment plans, prioritizing health goals, and exploring alternatives or streamlining care wherever possible. Access to social workers or patient navigators can help facilitate coordination of appointments and connect individuals with community resources to ease the logistical challenges of healthcare management.

By fostering meaningful dialogue with healthcare providers, asking questions about treatment options, and seeking clarification on expectations and resources needed for self-care, older adults and caregivers can navigate the complexities of the healthcare system more effectively and improve their overall healthcare experience. Ultimately, addressing the challenges of healthcare coordination and treatment burden requires a collaborative effort between patients, providers, and healthcare systems to ensure that care is both effective and manageable.